Research Studies

Study Title

CReATe Consortium: CAPTURE-ALS (Clinical Procedures to Support Research in ALS) Study

Enrollment Status

Current

Principal Investigators

Michael Benatar, MD, PhD

Study Type

Observational

Goals

Utilize information collected in the electronic health records to advance ALS research and to improve the quality of ALS patient care

Enrolling

Multidisciplinary ALS Clinic patients

Eligibility

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Diagnosis of ALS or a related disorder
Receiving care at the UMiami Multidisciplinary ALS clinic (or at another study site)

Study Involvement

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Provide electronic consent for researchers to use clinically collected information in electronic health records for research purposes
Optional: One-time DNA (blood sample) collection

Primary Funding Source

NIH, MDA

Related Publications

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Granit V, Grignon AL, Wuu J, Katz J, Walk D, Hussain S, Hernandez J, Jackson C, Caress J, Yosick T, Smider N, Benatar M. Harnessing the power of the electronic health record for ALS research and quality improvement: CReATe CAPTURE-ALS and the ALS Toolkit. Muscle Nerve. 2021 Nov 3. Online ahead of print.

https://pubmed.ncbi.nlm.nih.gov/34730240

Related Presentations & Lectures

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